I asked my wife DawnMarie to write today's post. Here it is:
Last week Brad asked me to write an entry for his blog about
what life is like to live with him. I laughed! Later on he asked me again and I
could see that it meant a lot to him. So here it is…
For the past six years, it has been hard work living with
Brad. He is opinionated, headstrong, and brutally honest. I would always tell
him to choose his battles. Why fight over the small stuff.
Brad’s illness has given me a new perception on life. I cherish
every minute with Brad. I cherish every minute with the kids. I cherish every
minute I have to myself. We seem to enjoy the silence. We can sit in a room and
hold each other’s hand and no words need to be exchanged. Brad has a presence
about himself. I enjoy hearing his voice; he is downstairs right now talking to
Isabella and helping her with a project.
We have a difference of opinion on how to raise the kids,
which has caused many disagreements. There have been many times that we went to
bed angry and wouldn’t talk or text each other, waiting for someone to
apologize. I think most of the time; I
finally gave in and said I was sorry. Looking back, it doesn’t seem really
important. Now I let most things roll off my back. I choose my battles more wisely.
Our life has been filled with adventures and travels. I have
seen much of the United States driving around with Brad. Once I saw on the
discovery channel a special about the Mall of America and that summer he
planned a car trip out to Minnesota. That
is Brad’s caring side. He is very generous to those around him.
During the six years of our marriage; parenting has taken up
most of our time. We spend more time together as a family then as a couple. No
dates or alone time. Always being pulled and running. Always sharing each other with others. Now we
enjoy just getting out for a cup of coffee, or going food shopping together.
Having together time to talk about our day.
The last six months have been a complete rollercoaster ride
an array of emotions, laughter and tears. Brad has won the lottery… no money
received but a lifetime of blood work, scans, MRI’s, Pet scans, trips to
Maryland, copays, medical billing (my new job), and medicines. To tell you the truth,
it is ok!
I am so happy that Brad is finally off the prednisone
because you never knew whom you were getting. Good Brad or Crazy Brad. If good Brad was around, we laughed, ate
dinner together, and chilled out as a family. But if Crazy Brad was around we
all ran away. After the first month though, I would just laugh because he was not
acting normal. Meltdowns over clothes! My favorite was his meltdown over a
haircut that wasn’t to his liking. He decided to trim his hair all by himself
but forgot to check the setting and took a big chunk out of this hair right in
the front. Oh drum roll please…it was 6:00 in the morning before work. So he
went through the day wearing a wool hat. LOL then he goes to the barber and
tells them that his wife did it. They were so upset with me I had to find a new
shop to take our son Bradley to.
These last six months have strengthened us as a team. When I
am feeling overloaded or completely drained then He will pick himself out of
bed and take over. I am sitting in my room right now filling back up. When I am
crying uncontrollably he is there to embrace and console me.
Living with Brad is never dull!
I always feel loved!
I am so proud of you and the way in which you are managing this journey. Your new path is one which teaches all of us to celebrate the moments. You and Brad are showing your girls how to overcome all obstacles with love.xoxo your private dancer Soozyonce
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