The Holy Grail

In one of the best epic journey movies of its era Indiana Jones and the Last Crusade we find Indy searching for the cup that Christ drank from when he and the disciples partook of the last supper. He has to find the cup to save his father from (I know this is going to sound crazy if you never watched the movies but it is true) the Nazi's.

As part of my epic ECD journey I have been continuing to lose weight and when I went down to Baltimore last week Dr. Scheel was concerned. After discussing all the details of when I feel pain and when I don't along with what food restrictions I have imposed on myself he said two things.

1.) "I don't think you have pancreatitis, the inflammation on your CT scan was probably from the ECD around your pancreas".

2.) "You should see a nutritionist"

Wow!!! That means I can eat whatever I want right!?!? So I tried (wings and nachos at Buffalo Wild Wings) and felt like I was dying for three days. So there is something wrong, perhaps its not pancreatitis, but we don't know what it is.

This means I need an expert on the retro peritoneal area of the body, someone who understands pancreas issues, someone who has experience dealing with cancer-like invasive organisms, someone who truly understands nutrition, someone who appreciates my desire to eat whole foods.

Unfortunately, that's about as easy to find as a skinny Sumo Wrestler.



Oh look...a skinny Sumo Wrestler! So it is possible!

What I am trying to find is a doctor that specializes in Nutrition. Preferably someone who has a good understanding of invasive diseases and a willingness to take on a rare diseased person like me (by the way I have good insurance so luckily this is not an issue).

DawnMarie helped me send out my information to doctors at Sloan Kettering and and Mount Sinai, both had nurses who were wary of letting me speak to the doctor because, "he has never worked with someone who doesn't have a cancer diagnosis". So we will see. If you happen to know someone who could help please message me their info.

Good Night, and by the way...you all are great. You make we feel listened to, loved, and respected. These are all things one can never get to much of.