Yesterday was a very long day. I drove down to Baltimore for my appointment and then came back the same day (I usually sleep over but I am trying to miss as few days of work as possible so we made it a one day trip).
One of the things we talked about with Dr. Scheel is pain managment. As I mentioned yesterday he thinks all of the pain I am experiencing is related to the ECD clusters. That would mean that whatever is happening in my retro peritoneal cavity is causing pain to radiate through my hips, thighs, and back. That being said he prescribed me a new pain management drug called Tramadol, saying that it was good because it wasn't a narcotic but still effective.
So...I want you to know that I am not proud of what I am about to tell you. I am only telling you this because I started this blog to help me sort out my thoughts and to help others that will come after me understand what it is like to live with a rare disease. So I want to acknowledge that sometimes things do get a little crazy!
Here are the facts:
1.) My doctor sent my prescription to CVS so that it would be ready for me to pick up when I got home.
2.) We hurried from Baltimore, MD only stopping once to get there before they closed so we could pick it up.
3.) They told me they didn't get it (the prescription).
4.) I know they got it, I saw the confirmation when I was in Baltimore, MD.
5.) They then told me they had denied the online prescription because in NY Tramadol is a controlled narcotic (not so in MD).
6.) The Pharmacist was unapolagetic and said I should have brought a paper prescription.
7.) I told her I had e-prescriptions filled many times.
8.) She said I would have to go back to the doctor and get a written prescription.
9.) I said (to DawnMarie) I need to leave I am getting mad.
10.) I yelled something as I was leaving the pharmacy about how i was tired of constantly dealing with incompetent people with low IQ's (you get the idea).
11.) I punched the top pack of toilet paper in a large toilet paper castle built as an endcap display.
12.) I was almost out the door 10 second later when I heard a crumbling noise. The display then collapsed, with toilet paper going everywhere*.
13.) I left the building.
14.) Pharmacist said, "I understand why he is frustrated"
15.) DawnMarie said, "No, he is in pain!"
16.) DawnMarie stayed and figured out what we need to do to get the pescription filled.
17.) All the pharmacy staff started talking about, "that crazy guy who just knocked over the toilet paper display like he was Chuck Norris or something".
How I was feeling...ashamed as I sat in car waiting to get yelled at for my behavior.
How DawnMarie reacted...rolling non-stop laughter, kept saying something about how I was a lunatic when she wasn't laughing so hard I thought she would pass out.
I am glad that DawnMarie was able to laugh about it. In fact she is laughing right now as I am typing this. I however am mortified for two reasons. First, I like to think I have a little more control then to snap in public. Second, I never realized how powerful and devastating my punching was.
Watch out CVS. I better get good service next time or the Paper Towels get it.
*(If anyone from CVS is reading this I am sorry, the toilet paper display was pretty and I did not mean to ruin it.)
One of the things we talked about with Dr. Scheel is pain managment. As I mentioned yesterday he thinks all of the pain I am experiencing is related to the ECD clusters. That would mean that whatever is happening in my retro peritoneal cavity is causing pain to radiate through my hips, thighs, and back. That being said he prescribed me a new pain management drug called Tramadol, saying that it was good because it wasn't a narcotic but still effective.
So...I want you to know that I am not proud of what I am about to tell you. I am only telling you this because I started this blog to help me sort out my thoughts and to help others that will come after me understand what it is like to live with a rare disease. So I want to acknowledge that sometimes things do get a little crazy!
Here are the facts:
1.) My doctor sent my prescription to CVS so that it would be ready for me to pick up when I got home.
2.) We hurried from Baltimore, MD only stopping once to get there before they closed so we could pick it up.
3.) They told me they didn't get it (the prescription).
4.) I know they got it, I saw the confirmation when I was in Baltimore, MD.
5.) They then told me they had denied the online prescription because in NY Tramadol is a controlled narcotic (not so in MD).
6.) The Pharmacist was unapolagetic and said I should have brought a paper prescription.
7.) I told her I had e-prescriptions filled many times.
8.) She said I would have to go back to the doctor and get a written prescription.
9.) I said (to DawnMarie) I need to leave I am getting mad.
10.) I yelled something as I was leaving the pharmacy about how i was tired of constantly dealing with incompetent people with low IQ's (you get the idea).
11.) I punched the top pack of toilet paper in a large toilet paper castle built as an endcap display.
12.) I was almost out the door 10 second later when I heard a crumbling noise. The display then collapsed, with toilet paper going everywhere*.
13.) I left the building.
14.) Pharmacist said, "I understand why he is frustrated"
15.) DawnMarie said, "No, he is in pain!"
16.) DawnMarie stayed and figured out what we need to do to get the pescription filled.
17.) All the pharmacy staff started talking about, "that crazy guy who just knocked over the toilet paper display like he was Chuck Norris or something".
How I was feeling...ashamed as I sat in car waiting to get yelled at for my behavior.
How DawnMarie reacted...rolling non-stop laughter, kept saying something about how I was a lunatic when she wasn't laughing so hard I thought she would pass out.
I am glad that DawnMarie was able to laugh about it. In fact she is laughing right now as I am typing this. I however am mortified for two reasons. First, I like to think I have a little more control then to snap in public. Second, I never realized how powerful and devastating my punching was.
Watch out CVS. I better get good service next time or the Paper Towels get it.
*(If anyone from CVS is reading this I am sorry, the toilet paper display was pretty and I did not mean to ruin it.)
I love your honesty, your blunt truth is refreshing and so very real. Thank you for sharing so unabashedly its inspiring. That being said I'm so sorry for the pain you're in, I love you.
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