I have an appointment at John Hopkins for a PET Scan today. The Dr. is looking to set a baseline for the extent to which this disease ECD has invaded my body. Some people have ECD growths in their lungs, heart, brain, etc. but so far I just have it in my abdomen and pelvis. I mean I may have ECD involvement in all those other areas but right now as I am writing this post I only know of its existence in my abdomen and pelvis.
My lack of knowledge reminds me of the Physicist Erwin Shrodinger who proposed a thought experiment that proved a cat could be both alive and dead at the same time, crazy I know! He argued that since one did not know if the cat which was in a sealed box was alive or dead it was actually both alive and dead at the same time (read below).
If I apply Shrodinger's theory to my disease...today, right now, before I go in and get this PET Scan done I could be one of the healthiest ECD patient ever. I have little known ECD involvement, little bone pain and positive hopes for a cure. Today, right now, before I go in and get the PET Scan done I could also be horribly sick with ECD everywhere including in my brain. My body according to Shrodinger is both in great shape and a horrible wreck until it is observed. It's easy to see why no one liked Shrodinger.
So here we are again waiting, oh the waiting! Lets hope my prognosis stays the same once the results come back, but if they don't I will be fine Crump's are born resilient.
My lack of knowledge reminds me of the Physicist Erwin Shrodinger who proposed a thought experiment that proved a cat could be both alive and dead at the same time, crazy I know! He argued that since one did not know if the cat which was in a sealed box was alive or dead it was actually both alive and dead at the same time (read below).
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| I like this explanation of Shrodinger's Theory plus its funny. |
If I apply Shrodinger's theory to my disease...today, right now, before I go in and get this PET Scan done I could be one of the healthiest ECD patient ever. I have little known ECD involvement, little bone pain and positive hopes for a cure. Today, right now, before I go in and get the PET Scan done I could also be horribly sick with ECD everywhere including in my brain. My body according to Shrodinger is both in great shape and a horrible wreck until it is observed. It's easy to see why no one liked Shrodinger.
So here we are again waiting, oh the waiting! Lets hope my prognosis stays the same once the results come back, but if they don't I will be fine Crump's are born resilient.
Keep up the positive thoughts Brad. God will be right there beside you during the scan and all of your praying friends will be doing their work.
ReplyDeleteNope, I don't hope your prognosis stays the same post-results. Let's plan for a miracle... even a small one.
ReplyDeleteAgreed?