Normal

Things have been abnormal for a year. During this time we have meticulously followed ever medical lead, pouring over the details of every test. We have trecked all over the country visiting any doctor we could find that might help me. 

During that time we have discovered that I have ECD, am immune deficient, have an enlarged spleen, lack the appropriate pancreatic enzymes, and have low testosterone. So overall I would say things are going well. Seriously, despite all that things seem to be on an upward trend. 

Today for the first time in a long time I found myself thinking, I have energy. On a Friday! I have energy! 

The fact is things are never going to get. back to normal (my portable pharmacy of shots and pills is proof of that), but I'll take this as my new normal. It's better then one would think my life would be with so many issues. It's better then I dared to hope for a year ago.