DawnMarie spent the weekend helping me
compile the information I needed to go to battle with the insurance company on
Monday. When she was done with that she thoroughly research CreonTM.
One funny thing we have found during this last year is that we are regularly
prescribed pills, capsules, shots, etc. with no real explanation on how to use
them.
Some of these things like my pain
medication TraMADolTM is easy to figure out. There is a max amount
allowed in one day and you can take up to that amount until the pain goes away.
For my KineretTM prescription
I had to look up on google how to gicve myself an injection. I was given no
classes, no instructions, in fact no guidance of any kind.
Now with CreonTM it turns
out the drug has very specific guideline for use. My doctor said take two pills
every time I eat. However, DawnMarie read up on it and I don’t need to take any
pills if eating foods with no fat (which I do a lot). In fact some times I will
only need to take one pill. I know this because of my wife. The fact is I haven’t
had a chance to do any research on this medication even though I have been
using the sample I was given for the last 3 days.
Two things. First this lack of guidance
and education is a problem and we must demand as patients better instruction
and care from our health care providers. I for one would love to have a managing
nurse assigned to me, one whose job was to manage my health not my cost to the
insurance company. Second, my wife is awesome. I’m pretty sure I would be dead
now if it weren’t for her.
If your doubting her awesomeness, here is a picture
of her hugging our son while we are praying in Sunday School (yes my eyes were
open). Life saving, praying, son hugging, sounds like she's on her way to sainthood.
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