I got a call tonight from both my primary care physician and from my doctor at JHU.
Primary Care Physicial - Turns out that I have IGA deficiency (since birth) and that my platelet count is very low. He suggested that I see a immunologist, so we are setting that up now. By the way...if you are related to me IGA deficiency is hereditary and is often associated with having other autoimmune diseases (so you may want to have the blood test run the next time your at the doctors office).
John Hopkins Physician - The samples taken at the NIH show malabsorption of fat. This is very big news because it proves that I am not crazy. Up until this point I have gotten the distinct impression that every doctor thought I was just not eating enough and that was why I am not gaining weight. This test shows that is am wasting fat and indicates that either I have a problem with my pancreas or with my bowels.
For most people this would be bad news, but I am thankful for the little we have learned and I hope with my doctors help we can build on this new found knowledge.
Primary Care Physicial - Turns out that I have IGA deficiency (since birth) and that my platelet count is very low. He suggested that I see a immunologist, so we are setting that up now. By the way...if you are related to me IGA deficiency is hereditary and is often associated with having other autoimmune diseases (so you may want to have the blood test run the next time your at the doctors office).
John Hopkins Physician - The samples taken at the NIH show malabsorption of fat. This is very big news because it proves that I am not crazy. Up until this point I have gotten the distinct impression that every doctor thought I was just not eating enough and that was why I am not gaining weight. This test shows that is am wasting fat and indicates that either I have a problem with my pancreas or with my bowels.
For most people this would be bad news, but I am thankful for the little we have learned and I hope with my doctors help we can build on this new found knowledge.
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