I like to think about myself as a tough guy. Not the whatyoutalkingabout, gtl (gym,tan,laundry), New Jersey guido type, but the I don't let little things get me down type. I deal with my legs and hips hurting every day, I accept the bouts of insomnia that come for no reason, I live with decreased energy, I roll with food limitations, and unexplained problems. I don't complain. Why? This is my life.
No matter how I feel about it this is the life I have. So the way I see it there's no point moping around wishing it was something else. I have Erdheim-Chester Disease and all the "fun" quirks that it brings. This is my life. I think I have a pretty good attitude about the whole thing. Which I assume is born out of common sense and a good upbringing.
My father taught me that there is not point complaining about things we cannot control. Here he is sitting in the waiting room while I was getting my first MRI (I ended up having three). I think he ended up spending about 30 hours sitting in waiting rooms and another 40 hours waiting by my hospital bed. Did he complain? Only once and that was because he couldn't find a place to get oatmeal (its always the little things right).
I am constantly telling my kids (at home and at work) that life is not fair, but the truth is this is a hard concept for a child to understand. My children's school supports this concept by teaching them the saying, "you get what you get and you don't get upset". They can say it but they don't get it. They don't yet understand the cruelties of life that we all must accept and live with (thank God).
Perhaps you have to live through life beating you up a little to understand that life's not fair and that's okay. I hope though that when my kids find life has been knocking them around they'll look around and find me...sitting there for them.
God bless you all and have a good night.
No matter how I feel about it this is the life I have. So the way I see it there's no point moping around wishing it was something else. I have Erdheim-Chester Disease and all the "fun" quirks that it brings. This is my life. I think I have a pretty good attitude about the whole thing. Which I assume is born out of common sense and a good upbringing.
My father taught me that there is not point complaining about things we cannot control. Here he is sitting in the waiting room while I was getting my first MRI (I ended up having three). I think he ended up spending about 30 hours sitting in waiting rooms and another 40 hours waiting by my hospital bed. Did he complain? Only once and that was because he couldn't find a place to get oatmeal (its always the little things right).
I am constantly telling my kids (at home and at work) that life is not fair, but the truth is this is a hard concept for a child to understand. My children's school supports this concept by teaching them the saying, "you get what you get and you don't get upset". They can say it but they don't get it. They don't yet understand the cruelties of life that we all must accept and live with (thank God).
Perhaps you have to live through life beating you up a little to understand that life's not fair and that's okay. I hope though that when my kids find life has been knocking them around they'll look around and find me...sitting there for them.
God bless you all and have a good night.
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