On Friday I wrote...
I believe that Dr. Scheel from John Hopkins will be coordinating with my Primary Care Physician (who just happens to be a gastroenterologist as well) to determine next steps. This condition is called Streatorrhea and can be caused by malabsorption, pancreatic insufficiency, pancreatitis, etc. Here are the symptoms: pale stools, weight loss, fatigue, flatulence, anemia, B-12 deficiency, bone pain, vitamin malabsorption, protein malabsorption, general motor weakness.
WOW! It is amazing how many of these symptoms I have been dealing with.
I have had a theory for the last 6 months that my wife has had to hear like a thousand times. It goes like this..
I am feeling confident that while this new test will cause me to undergo many more tests (DawnMarie has been trying to get them to do a colonoscopy. That's mean right!) it will also help solve the most persistent and annoying problem related with my disease so far, my weight and digestive pain issues.
Keeping my fingers crossed and praying that the coming months provide treatable answers.
"The samples taken at the NIH show malabsorption of fat. This is very big news because it proves that I am not crazy. Up until this point I have gotten the distinct impression that every doctor thought I was just not eating enough and that was why I am not gaining weight. This test shows that is am wasting fat and indicates that either I have a problem with my pancreas or with my bowels."This has been a gigantic revelation and the funny thing is I have had literally no time to process it, no time to talk with my wife about it, and little time to plan for next steps.
I believe that Dr. Scheel from John Hopkins will be coordinating with my Primary Care Physician (who just happens to be a gastroenterologist as well) to determine next steps. This condition is called Streatorrhea and can be caused by malabsorption, pancreatic insufficiency, pancreatitis, etc. Here are the symptoms: pale stools, weight loss, fatigue, flatulence, anemia, B-12 deficiency, bone pain, vitamin malabsorption, protein malabsorption, general motor weakness.
WOW! It is amazing how many of these symptoms I have been dealing with.
I have had a theory for the last 6 months that my wife has had to hear like a thousand times. It goes like this..
"The only reason I am not experiencing the pain I felt when this all started is because of my diet. In fact I believe that be eating super healthy I have masked the problems I have been experiencing from the doctors. Essentially by not taxing my system with fatty foods I am treating myself. The problem is it makes it difficult for them to spot whats wrong."The perfect example of this theory is the fecal fat test. It is supposed to be done on someone eating 100 grams of fat per day over three days (I rarely eat more then 20 grams of fat on any given day). Yet my result is still 3 times normal rage.
I am feeling confident that while this new test will cause me to undergo many more tests (DawnMarie has been trying to get them to do a colonoscopy. That's mean right!) it will also help solve the most persistent and annoying problem related with my disease so far, my weight and digestive pain issues.
Keeping my fingers crossed and praying that the coming months provide treatable answers.
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