Neural Distress

Can't sleep, feeling a little down about my disease today. I know I have a good doctor and I know that I am lucky to have caught this disease process so early, but I keep getting this nagging feeling that the other shoe hasn't dropped yet and that no one really understands what I have, if I have it, or how to treat it.

Brad Crump

I used to be so confident in Dr.'s and I wish I could return to that time when they were omnipotent. Unfortunately, I now realize their just guessing half the time while talking a really good game.

I have a PET Scan coming up on the 9/5/13 and that will serve as a baseline for my ECD from which we will be able to monitor remission or expansion whatever the case may be. It will also show if the disease has spread beyond my pelvis and abdomen. I'm scared they'll find more growth and concerned that i will have to wait three more month's from that date to assess the effectiveness of the Kineret treatment I am on.

On a separate note my wife went back home a few days ago to help get ready for school and to chauffeur my oldest daughter around to soccer and her TACHS class and I am a little crazy without her around. She is my rock.

I hope this feeling passes soon I don't like the way my brain is working right now.