In 2013 I started this Blog as a place to vent, a place to share my grief and fear after being diagnosed with ECD (a rare blood cancer called a histiocytic neoplasm). As you will be able to tell by reading my early posts I struggled in the beginning with what ECD meant for me and my life and at times suffered from depression and anxiety. Much has changed in the last 7 years. Currently I’m on medication that holds the devil at bay, giving me hope, but always reminding me that every day is a gift.
Thursday, January 21, 2016
ECD Global Alliance Gathering 2015 - Patients Speak
I'm the first Patient speaker on the panel. Check out the video at the link below.
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